Casey Rose Has a Mystery Illness that Has Stumped Every Doctor She Has Seen

PropertyTales

Casey Rose joins the hosts to share her harrowing journey with a series of undiagnosed medical issues following gallbladder surgery in 2020.

Key takeaways

• Casey Rose experienced significant weight loss, dropping from over 200 pounds to 133 pounds due to health complications.
• An exploratory surgery revealed that dissolvable mesh from a previous umbilical hernia repair was choking Casey's intestines.

Main topics

• Medical mysteries
• Surgical complications

Notable quotes

I am a complete mystery to everybody.

Conclusion

The episode serves as a poignant look at the struggle for medical reco

Transcript preview

Speaker 1 (0:00) So what are your symptoms? Speaker 3 (0:01) Are we jumping straight into this? Guys, hold on. I want to do a proper intro. I think we'll fit this. Welcome to the Property Tales podcast. Today we're doing body tales. This is Casey Rose and she has something wrong with her. She was in a magazine. Speaker 1 (0:17) That's a great picture of you. Speaker 3 (0:18) We are not medical professionals. Speaker 1 (0:21) I'm a doctor of law. Speaker 1 (0:24) My mom, Speaker 3 (0:25) growing up, had a lot of health problems. I've had a lot of health problems. And Billy here, he doesn't get sick. Speaker 1 (0:32) He's the picture of health. Speaker 3 (0:33) Hopefully, we can get... Speaker 2 (0:35) This Speaker 3 (0:35) is what Speaker 2 (0:35) peak masculinity looks like. Toxic Speaker 4 (0:38) masculinity. We can figure out Speaker 1 (0:40) what Speaker 4 (0:41) is going on. Yeah, what's going on? I really hope so, guys, because this started back in 2020. I was actually over 200 pounds, and I'm down to 133. How much do you weigh in Speaker 2 (0:50) that picture? Speaker 4 (0:50) And that picture, probably around the... Was it because Speaker 2 (0:54) of your disorder that or whatever it is that you got going on? Yeah. Speaker 4 (0:57) So when did things start? I Speaker 1 (1:00) mean, Speaker 4 (1:00) you're tall, Speaker 1 (1:00) so 200 doesn't sound bad. Speaker 4 (1:02) I was big. I was chunky. Oh, Speaker 1 (1:04) okay. Speaker 4 (1:04) Like, you could definitely tell I was very chunky. My face was really, really chunky, too. So back in 2020, I had a gallbladder surgery. Speaker 3 (1:12) And ever since then, I just completely fell apart. I don't know what happened. Speaker 4 (1:17) They said I have been to probably like. 50 specialties, maybe more. I mean, Cincinnati, Somerset, all over the place. I mean, back and forth to Cincinnati like four or five times. Speaker 1 (1:29) Well, let's start at the beginning. What were your first symptoms before the gallbladder surgery? So Speaker 4 (1:35) like I was starting to get sick and they're like, well, you have a gallstone. You need to have your gallbladder out. I was like, okay. So we had the gallbladder out. Well, under surgery, they're like, you had a mesh. They replaced it. I had an umbilical hernia is what I had. I've had it since I was a baby. Never bothered me. So the doctor's like, oh, we just put a little mesh in there. They fixed it. Well, the person that was with me, they didn't know nothing. They're like, okay, fine. So it's like I started getting all these symptoms. The first thing that came as a woman, hot flashes, waking up every single morning, like completely soaked in a hot flash, just miserable. And then I freeze all day long. It don't matter if it's 85 outside. I've always had to have a jacket with me. And I'm usually wearing jeans because I can't. I can't wear any cute dresses anymore or anything like that. Like, I just freeze to death everywhere I go. So it was just like one symptom started and then they just all started. Like, my whole body started hurting. The sun makes me sick. I wake up sick. When Speaker 1 (2:33) you wake up sick, what does that mean? Speaker 4 (2:35) Like, I just, I wake up and I'm just like throwing up. Oh, nauseous. Like, nauseous, sick. Yeah, it's horrible, y'all. I've already figured it out. It's like you can't. Speaker 1 (2:44) I've already Speaker 2 (2:44) figured out what's wrong. Speaker 1 (2:47) That 17th beer got her. Speaker 2 (2:48) What? No. I don't know what's wrong with her. Speaker 4 (2:50) What? Speaker 2 (2:50) The mash. Speaker 4 (2:51) No, no, no, no. They got to Speaker 2 (2:52) take it back out. No. Speaker 4 (2:54) So flash forward, flash forward. Can they put Speaker 1 (2:56) the gallbladder back in? Speaker 4 (2:57) No, unfortunately. Speaker 3 (2:59) Do you want mine? No. Speaker 4 (3:00) So flash forward. I seen a surgery center this year. I had another surgery. They come in and done an exploratory surgery just to see what was going on. If there was a mesh, what was going on? Well, the doctor said that he thinks that there was an unsolvable mesh, dissolvable mesh in my belly button. So I had a hole in my stomach when I went in to have surgery. Oh, my God. So my intestines were being choked. So they figured that out and they did that surgery. So now I've got another big scar in my stomach. Did they Speaker 1 (3:24) have to remove some of your intestines? Speaker 4 (3:26) I don't honestly know what they did. Speaker 1 (3:28) I Speaker 4 (3:28) just know. You just Speaker 1 (3:29) kind of. I just Speaker 4 (3:31) want answers. That's Speaker 3 (3:32) something is somebody who I've had struggles with my health. Yeah. And then it affects your mental health. And then it's like a never ending cycle. And like I said, my mom for 40 years went through. You have fibromyalgia. This is probably in your head. You just need to eat better. The Speaker 4 (3:49) doctors are going straight to fibromyalgia for me because my whole body hurts. Have Speaker 1 (3:54) you started Lyrica yet? Speaker 4 (3:56) Or Speaker 1 (3:56) are you taking medicine for fibromyalgia? Speaker 4 (3:59) No. They just say that I have it. I go see a chiropractor two times a week. Is there anything Speaker 1 (4:04) that gives you Speaker 2 (4:05) relief? What makes you feel better at all? Speaker 4 (4:07) No. Have you had any weirdos? So Speaker 1 (4:09) tell us about the magazine. Speaker 4 (4:11) So the lady reached out to me in the magazine. She's like, we heard that you've been sick. We want to interview you. So they came to my house and did that. And I think she got that other picture off of TikTok. But they just randomly did that magazine. I have been trying to find answers for over six years now. So when was that second surgery? And Speaker 1 (4:29) I just keep Speaker 4 (4:29) dropping weight. You're advocating for yourself. When was that Speaker 1 (4:31) second surgery? Speaker 4 (4:32) The second, well, I've had four. But the second one, well, the last surgery I had was this year. Speaker 1 (4:39) So the second surgery was an exploratory abdominal surgery. What was the third one? Speaker 4 (4:43) The other one was endometriosis. So they thought endo was something. Because I had endometriosis. So they did that. They did the laparoscopy and scraped everything out. Well, two years later, they said, we think it's come back. So we're going to do it again. Well, there was nothing there when they went in. So it was like a waste of time, basically. I had a little bit, but nothing that was going to make me. Speaker 3 (5:05) I don't know how much you want to discuss. When you're talking medical, though, I'm very usually blunt to it. Speaker 4 (5:10) Yeah, I'm Speaker 3 (5:10) blunt. Speaker 4 (5:10) I don't care. Your Speaker 3 (5:12) cycles and stuff, were they exhibiting that of endometriosis, a lot of clotting, very heavy? Yeah, but just completely jacked altogether. And Speaker 4 (5:22) I've been having chemical pregnancies every month. Oh, my gosh. Yes. This is... I'm literally, I go to the doctor, I swear to God, I show them the, like the pregnancy test and everything that's fading. And they're like, well, those are just evaps. And I'm like, how do you get evaps from a bag in Tennessee and a bag in Kentucky and all this? And they're like, well, we, then the one doctor was like, well, you're having chemical pregnancies Speaker 3 (5:44) every month. It's very, very possible. And I'm like, I Speaker 4 (5:47) didn't even know what it was. I'm like, well, you know, what the heck is that? Other symptom Speaker 3 (5:50) wise, like you were talking daily, because I'm automatically going to, because my mom's was so hard that it took. 2015. The reason I remember that is because my grandfather died. Her dad. She was at the funeral. She had a backless dress on. It was a black dress and it had a little thing where you could see her spine. You don't usually see my mom wearing anything backless. So I noticed when she was at the casket, she had this little thing about this smudge size. And it looked like a bruise. It was like a thick red thing. And I was like, did you hit your back? raising up, moving anything, seeing what's been in his house. No. Go to the rheumatologist. She goes, I don't like that. It was like the color of a Dr. Pepper lid. Like, it was like a very odd color. They punch biopsy it, muscle tissue biopsy. They send it off. She has a rare form of lupus where the sun is her enemy. Literally, the sun makes her sick. I feel like Speaker 4 (6:47) the sun's my enemy. Speaker 3 (6:48) Her kidneys, that was why they kept having issues with her kidneys. They would show up great on her. They'd send them off for what's that cultures. Speaker 4 (6:58) No Speaker 3 (6:58) bacteria, nothing. But she would be in so much pain. Her ribs would hurt like she had the flu all the time. Speaker 4 (7:03) Yeah. Mine does right here. Like in right here on my side of my back. It could be. I don't have my blood test is popped up. It says positive for lupus. But then I go to rheumatology and they're like, you're fine. Your blood is fine. It Speaker 3 (7:14) could be Speaker 4 (7:14) a Speaker 3 (7:14) muscle tissue. Have you had one? No. Speaker 2 (7:16) Get a muscle tissue biopsy. They need to just hire her. No, Speaker 3 (7:20) I love watching stuff about diagnostics because my childhood was spent at UK. Yeah. Being with my mother every, sometimes every week to figure out what is this that's making her sick. My mom would, she would have no energy. Speaker 4 (7:36) What's up, everybody? We're going to take a quick ad break and hear a word from Speaker 3 (7:40) our sponsor. You know what I hate more than anything, Barrett? Speaker 1 (7:42) What's that, Tara? Speaker 3 (7:43) The sun. Speaker 1 (7:44) I hate the sun. I Speaker 3 (7:45) hate the sun. Speaker 1 (7:46) Can I say that? Yeah. What are you going to do about it, though? Speaker 3 (7:48) Well, I can put on sunscreen for my body. I can try to tan if I want to. But for